Position statement on access to care in rare liver diseases: advancements of the European reference network (ERN) RARE-LIVER

Abstract The European Reference Network for rare liver diseases (ERN RARE-LIVER) is a Europe-wide network of paediatric and adult hepatologists from expert centres in close collaboration with patient advocates from the various disease-areas covered in our ERN. The ERN is focused on providing more eq...

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Bibliographic Details
Main Authors: Lucas H. P. Bernts, David E. J. Jones, Marleen M. Kaatee, Ansgar W. Lohse, Christoph Schramm, Ekkehard Sturm, Joost P. H. Drenth
Format: Article
Language:English
Published: BMC 2019-07-01
Series:Orphanet Journal of Rare Diseases
Subjects:
ERN
Online Access:http://link.springer.com/article/10.1186/s13023-019-1152-z