"On a good day no one knows": Management of disease impacts in Barth Syndrome
Thesis advisor: Sara Moorman === Improved survival for medical conditions that were previously fatal in infancy has led to more individuals living longer with chronic illnesses. These individuals, some of whom have largely unapparent, unpredictable, and yet severe symptoms from birth, may experience...
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| Format: | Others |
| Language: | English |
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Boston College
2019
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| Online Access: | http://hdl.handle.net/2345/bc-ir:108380 |