The Psychological and Faith Process of the Caregivers of Rare Diseases: A Study on the Self-narrative from Primary Caregivers of Niemann-Pick Disease patients

碩士 === 真理大學 === 宗教文化與組織管理學系碩士班 === 107 === Abstract Rare disease caregivers must face economic, family, physical, psychological, interpersonal pressures. The author of this thesis faces the shocks and changes brought by the rare diseases of her children. She narrates her long-suffering experience...

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Bibliographic Details
Main Authors: CHOU,LI-LING, 周麗玲
Other Authors: CHANG,YEA-HUEY
Format: Others
Language:zh-TW
Published: 2019
Online Access:http://ndltd.ncl.edu.tw/handle/a6n495