The experience of medical decision-making for adolescents with a progressive neuromuscular disease

Progressive Neuromuscular Diseases (PNDs) are relentless, debilitating, incurable diseases that cause nerves and muscles to atrophy. A large portion of the population who experience PNDs are adolescents. These adolescents progressively lose physical abilities and increasingly rely on caregivers at a...

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Bibliographic Details
Main Author: Derman, Sarah Jane
Format: Others
Language:English
Published: University of British Columbia 2009
Subjects:
Online Access:http://hdl.handle.net/2429/4085