An exploration of the psychosocial impact of epidermolysis bullosa on the daily lives of affected adults and identification of associated support needs
Epidermolysis Bullosa (EB) is the term used to describe a number of genetically determined disorders characterised by excessive susceptibility of the skin and mucosae to separate from the underlying tissue following mechanical trauma. EB is a rare, life-long and non-curable condition. At its clinica...
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University of the West of England, Bristol
2009
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Online Access: | http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.522538 |