“Is this my life?”Meaning and sense-making as key determinants of parents’ experience when caring for children with disabilities, life-threatening/life-limiting illness or technology dependence
Parenthood presents many challenges. For parents of children with disabilities and complex health needs those challenges are often very considerable indeed. This study is concerned with the experiences of the parents of 34 such children. NHS Clinical staff working within one English county nominated...
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London South Bank University
2009
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| Online Access: | http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.593650 |