Usher syndrome : a phenomenological study of adults across the lifespan living in England

Usher syndrome is a rare inherited genetic condition which is one of the main causes of acquired deafblindness in the United Kingdom (UK). Although the condition is not life threatening, it is life altering and will have a significant impact on the lives of not only the person diagnosed with the con...

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Bibliographic Details
Main Author: Evans, Michelle Deborah
Other Authors: Baillie, Lesley ; Curzio, Joan
Published: London South Bank University 2017
Online Access:https://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.740172