Towards an explanatory model of socio-emotional functioning in children and adolescents with congenital dermatological disfigurement : the role of attachment and shame

The main aim of this study was to start to develop a framework to understand socio-emotional heterogeneity in young people with congenital dermatological disfigurement. The rationales for this study were a) congenital dermatological disfigurement has been studied far less than other forms of disfigu...

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Bibliographic Details
Main Author: Soon, Kristina
Other Authors: Butler, Stephen ; Wray, Jo ; Franck, Linda
Published: University College London (University of London) 2015
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Online Access:https://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.755975
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Summary:The main aim of this study was to start to develop a framework to understand socio-emotional heterogeneity in young people with congenital dermatological disfigurement. The rationales for this study were a) congenital dermatological disfigurement has been studied far less than other forms of disfigurement b) school-aged young people with disfigurement have been studied less than adults and infants c) the existing literature has indicated a high degree of psychological heterogeneity in this population which has not been adequately accounted for. Specifically, the study investigated the role of attachment and shame in explaining variance in socio-emotional functioning in 8-16 year olds with congenital dermatological disfigurement. Standardised measures were completed by 122 young people and their accompanying parent/guardian at a specialist paediatric dermatology unit. Comparisons were made between disfigurement group means and general population means. Within participant associations were also explored. The results provided some support for the proposed model. This study constituted a first step in developing a comprehensive, explanatory framework for understanding socio-emotional development in this population. The study also identified the potential influence of other illness variables and social rejection in explaining socio-emotional functioning in this group.