Research Participation Decision-Making Among Youth and Parents of Youth with Chronic Health Conditions: A Dissertation

The purpose and aims of this qualitative descriptive study were to describe how past experiences with research (including communication, information, values and support) may contribute to research fatigue among youth and parents of youth with HIV, CF, and T1D. Eighteen parents and youth were purposi...

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Bibliographic Details
Main Author: Pagano-Therrien, Jesica
Format: Others
Published: eScholarship@UMMS 2016
Subjects:
Online Access:https://escholarship.umassmed.edu/gsn_diss/44
https://escholarship.umassmed.edu/cgi/viewcontent.cgi?article=1053&context=gsn_diss