Core set of patient-reported outcomes for myelodysplastic syndromes: an EUMDS Delphi study involving patients and hematologists

Core set of patient-reported outcomes for myelodysplastic syndromes: an EUMDS Delphi study involving patients and hematologists

Patient-reported outcomes (PROs) are relevant and valuable end points in the care of patients with myelodysplastic syndromes (MDS). However, a consensus-based selection of PROs for MDS, derived by both patients and hematologists, is lacking. We aimed to develop a core set of PROs for patients with M...

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Bibliographic Details
Main Authors: Arvandi, M. (Author), Bowen, D. (Author), Chermat, F. (Author), Conrads-Frank, A. (Author), de Witte, T. (Author), Efficace, F. (Author), Fenaux, P. (Author), Garelius, H. (Author), Koinig, K.A (Author), Mittelman, M. (Author), Mora, E. (Author), Puntscher, S. (Author), Rochau, U. (Author), Siebert, U. (Author), Stauder, R. (Author), Stojkov, I. (Author), Symeonidis, A. (Author), van Marrewijk, C. (Author)
Format: Article
Language:English
Published: American Society of Hematology 2022
Subjects:
adult
aged
Article
blood transfusion
clinical article
clinical practice
clinical research
consensus
controlled study
correlation coefficient
daily life activity
Delphi study
disease registry
Europe
female
health service
hematologist
human
leukemia
male
myelodysplastic syndrome
patient care
patient-reported outcome
practice guideline
quality of life
rank sum test
statistical significance
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