Pooling and expanding registries of familial hypercholesterolaemia to assess gaps in care and improve disease management and outcomes: Rationale and design of the global EAS Familial Hypercholesterolaemia Studies Collaboration

Background The potential for global collaborations to better inform public health policy regarding major non-communicable diseases has been successfully demonstrated by several large-scale international consortia. However, the true public health impact of familial hypercholesterolaemia (FH), a commo...

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Main Authors:	Abifadel, M. (Author), Aguilar-Salinas, C.A (Author), Akram, A. (Author), Alnouri, F. (Author), Alonso, R. (Author), Al-Rasadi, K. (Author), Banach, M. (Author), Bogsrud, M.P (Author), Bourbon, M. (Author), Bruckert, E. (Author), Car, J. (Author), Catapano, A.L (Author), Ceska, R. (Author), Cole, D. (Author), Corral, P. (Author), Descamps, O. (Author), Dieplinger, H. (Author), Do, C.T (Author), Durst, R. (Author), Ezhov, M.V (Author), Fras, Z. (Author), Freiberger, T. (Author), Gaita, D. (Author), Gaspar, I.M (Author), Genest, J. (Author), Harada-Shiba, M. (Author), Hovingh, G.K (Author), Jiang, L. (Author), Kastelein, J.J.P (Author), Kayikcioglu, M. (Author), Kondapally Seshasai, S.R (Author), Lam, C.S.P (Author), Latkovskis, G. (Author), Laufs, U. (Author), Liberopoulos, E. (Author), Lin, J. (Author), Lin, N. (Author), Maher, V. (Author), Majano, N. (Author), Marais, A.D (Author), März, W. (Author), Mata, P. (Author), Mirrakhimov, E. (Author), Miserez, A.R (Author), Mitchenko, O. (Author), Nawawi, H. (Author), Nilsson, L. (Author), Nordestgaard, B.G (Author), Paragh, G. (Author), Petrulioniene, Z. (Author), Pojskic, B. (Author), Raal, F.J (Author), Ray, K.K (Author), Reiner, Ž (Author), Sahebkar, A. (Author), Santos, L.E (Author), Santos, R.D (Author), Schunkert, H. (Author), Shehab, A. (Author), Slimane, M.N (Author), Soran, H. (Author), Stoll, M. (Author), Su, T.-C (Author), Susekov, A. (Author), Tilney, M. (Author), Tomlinson, B. (Author), Tselepis, A.D (Author), Vallejo-Vaz, A.J (Author), Vohnout, B. (Author), Watts, G.F (Author), Widén, E. (Author), Yamashita, S. (Author)
Format:	Article
Language:	English
Published:	Elsevier Ireland Ltd 2016
Subjects:	access to information Access to Information Article Cardiovascular disease clinical trial computer security cooperation Cooperative Behavior data base data mining Data Mining Delivery of Health Care, Integrated Familial hypercholesterolaemia Familial Hypercholesterolaemia Studies Collaboration familial hypercholesterolemia genetics human Humans Hyperlipoproteinemia Type II information dissemination information processing information retrieval Information Storage and Retrieval integrated health care system international cooperation International Cooperation interpersonal communication LDL-Cholesterol medical ethics medical information medical society methodology mortality multicenter study organization organization and management Organizational Objectives patient care practice gap priority journal Professional Practice Gaps register Registries Registry Research Design Study design treatment outcome Treatment Outcome
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Pooling and expanding registries of familial hypercholesterolaemia to assess gaps in care and improve disease management and outcomes: Rationale and design of the global EAS Familial Hypercholesterolaemia Studies Collaboration

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