Costs and health resource use in patients with X-linked myotubular myopathy: Insights from US commercial claims

Costs and health resource use in patients with X-linked myotubular myopathy: Insights from US commercial claims

BACKGROUND: In X-linked myotubular myopathy (XLMTM), mutations in the MTM1 gene result in absence or dysfunction of myotubularin, a protein required for normal development, maintenance, and function of skeletal muscle. Extreme muscle weakness results in severe respiratory failure that is fatal for a...

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Bibliographic Details
Main Authors: Beggs, A.H (Author), Cyr, P.L (Author), Graham, R.J (Author), Healey, B.E (Author), James, E. (Author), Sacks, N.C (Author), Slocomb, T. (Author)
Format: Article
Language:English
Published: Academy of Managed Care Pharmacy (AMCP) 2021
Subjects:
algorithm
ambulatory surgery
Article
artificial ventilation
assisted ventilation
centronuclear myopathy
child
clinical article
clinical outcome
economics
female
health care cost
Health Care Costs
health care planning
health care utilization
health insurance
Health Resources
hospital admission
hospital patient
hospitalization
human
Humans
insurance
Insurance Claim Review
Insurance Coverage
Insurance, Health
intensive care unit
invasive ventilation
laboratory test
longitudinal study
male
Myopathies, Structural, Congenital
myopathy
neonatal intensive care unit
outpatient care
patient mobility
preschool child
prescription drug
private health insurance
rare disease
respiratory failure
Retrospective Studies
retrospective study
United States
X chromosome linked disorder
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