The ERN-LUNG Population Registry: Aims, Software-Implementation and First Results

The ERN-LUNG Population Registry is a new European-wide collection of patients with rare lung diseases, allowing patients to register online in the registry. Medical experts can recruit patients in the registry for disease-specific registries and care options. The Population Registry was implemented...

Full description

Bibliographic Details
Main Authors: Goebel, J. (Author), Omran, H. (Author), Pennekamp, P. (Author), Schaaf, J. (Author), Storf, H. (Author), Wagner, T.O.F (Author), Zieschank, A. (Author)
Format: Article
Language:English
Published: NLM (Medline) 2022
Subjects:
Online Access:View Fulltext in Publisher