'Is this knowledge mine and nobody else's? I don't feel that.' Patient views about consent, confidentiality and information-sharing in genetic medicine

In genetic medicine, a patient's diagnosis can mean their family members are also at risk, raising a question about how consent and confidentiality should function in clinical genetics. This question is particularly pressing when it is unclear whether a patient has shared information. Conventio...

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Bibliographic Details
Main Authors: Dheensa, Sandi (Author), Fenwick, Angela (Author), Lucassen, Anneke (Author)
Format: Article
Language:English
Published: 2016-02-25.
Subjects:
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