Mitochondrial disease: needs and problems of children, their parents and family. A systematic review and pilot study into the need for information of parents during the diagnostic phase.
Objective - Firstly, this paper aims to systematically review the mitochondrial disease literature to identify studies assessing the needs and problems in the daily life of children with a mitochondrial disease and of their parents and family. The second aim is to provide more insight into the need...
| Main Authors: | , , , , , , |
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| Format: | Article |
| Language: | English |
| Published: |
2007-06.
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| Subjects: | |
| Online Access: | Get fulltext |