Mitochondrial disease: needs and problems of children, their parents and family. A systematic review and pilot study into the need for information of parents during the diagnostic phase.
Objective - Firstly, this paper aims to systematically review the mitochondrial disease literature to identify studies assessing the needs and problems in the daily life of children with a mitochondrial disease and of their parents and family. The second aim is to provide more insight into the need...
Main Authors: | Noorda, G. (Author), Hermans-Peters, M. (Author), Smeitink, J. (Author), van Achterberg, T. (Author), Kemps, H. (Author), Goverde, W. (Author), Schoonhoven, L. (Author) |
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Format: | Article |
Language: | English |
Published: |
2007-06.
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Subjects: | |
Online Access: | Get fulltext |
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