Pooling and expanding registries of familial hypercholesterolaemia to assess gaps in care and improve disease management and outcomes: Rationale and design of the global EAS Familial Hypercholesterolaemia Studies Collaboration

Pooling and expanding registries of familial hypercholesterolaemia to assess gaps in care and improve disease management and outcomes: Rationale and design of the global EAS Familial Hypercholesterolaemia Studies Collaboration

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Background: The potential for global collaborations to better inform public health policy regarding major non-hypercholesterolaemia (FH), a common genetic disorder associated with premature cardiovascular disease, is yet to be reliably ascertained using similar approaches. The European Atheroscleros...

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Main Authors: EAS Familial Hypercholesterolaemia, Abifadel, M (Author), Aguilar-Salinas, CA (Author), Akram, A (Author), Alnouri, F (Author), Alonso, R (Author), Al-Rasadi, K (Author), Banach, M (Author), Bogsrud, MP (Author), Bourbon, M (Author), Bruckert, E (Author), Car, J (Author), Catapano, AL (Author), Ceska, R (Author), Cole (Author), Corral, P (Author), Descamps, O (Author), Dieplinger, H (Author), Do, CT (Author), Durst, R (Author), Ezhov, MV (Author), Fras, Z (Author), Freiberger, T (Author), Gaita, D (Author), Gaspar, IM (Author), Genest, J (Author), Harada-Shiba, M (Author), Hovingh, GK (Author), Jiang, LX (Author), Kastelein, JJP (Author), Kayikcioglu, M (Author), Lam, CSP (Author), Latkovskis, G (Author), Laufs, U (Author), Liberopoulos, E (Author), Lin, J (Author), Lin, N (Author), Maher, V (Author), Majano, N (Author), Marais, AD (Author), Marz, W (Author), Mata, P (Author), Mirrakhimov, E (Author), Miserez, AR (Author), Mitchenko, O (Author), Nawawi, H (Author), Nilsson, L (Author), Nordestgaard, BG (Author), Paragh, G (Author), Petrulioniene, Z (Author), Pojskic, B (Author), Raal, FJ (Author), Ray, KK (Author), Reiner, Z (Author), Sahebkar, A (Author), Santos, LE (Author), Santos, RD (Author), Schunkert, H (Author), Seshasai, SRK (Author), Shehab, A (Author), Slimane, MN (Author), Soran, H (Author), Stoll, M (Author), Su, TC (Author), Susekov, A (Author), Tilney, M (Author), Tomlinson, B (Author), Tselepis, AD (Author), Vallejo-Vaz, AJ (Author), Vohnout, B (Author), Watts, GF (Author), Widen, E (Author), Yamashita, S (Author)
Format: Article
Language:English
Published: 2016
Subjects:
Cardiovascular disease
CARDIOVASCULAR-DISEASE
CLINICIAN
CONSENSUS PANEL
Familial hypercholesterolaemia
Familial Hypercholesterolaemia Studies Collaboration
GENERAL-POPULATION
GUIDANCE
GUIDELINES
INDIVIDUAL PARTICIPANT DATA
LDL-Cholesterol
PREDICTION
PREVALENCE
Registry
RISK
Study design
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