Translation of the quality-of-life measure for adults with primary ciliary dyskinesia and its application in patients in Brazil

by Ana Paula Lima de Queiroz, Rodrigo Abensur Athanazio, Mary Anne Kowal Olm, Bruna Rubbo, Yuri Reis Casal, Jane Lucas, Laura Behan
Published 2019-04-01

Health related quality of life in adult primary Ciliary dyskinesia patients in Cyprus: development and validation of the Greek version of the QOL-PCD questionnaire

by Phivos Ioannou, Panayiotis Kouis, Maria G. Kakkoura, Margarita Kaliva, Aristoula Toliopoulou, Kyriacos Andreou, Laura Behan, Jane S. Lucas, Vicky Papanikolaou, George Charalambous, Nicos Middleton, Panayiotis K. Yiallouros
Published 2020-04-01

Prevalence and course of disease after lung resection in primary ciliary dyskinesia: a cohort & nested case-control study

by Panayiotis Kouis, Myrofora Goutaki, Florian S. Halbeisen, Ifigeneia Gioti, Nicos Middleton, Israel Amirav, on behalf of the Israeli PCD Consortium, Angelo Barbato, on behalf of the Italian PCD Consortium, Laura Behan, Mieke Boon, Nagehan Emiralioglu, Eric G. Haarman, Bulent Karadag, Cordula Koerner-Rettberg, Romain Lazor, on behalf of the Swiss PCD Group, Michael R. Loebinger, Bernard Maitre, on behalf of the French Reference Centre for Rare Lung Diseases, Henryk Mazurek, Lucy Morgan, Kim Gjerum Nielsen, Heymut Omran, Ugur Özçelik, Mareike Price, Andrzej Pogorzelski, Deborah Snijders, on behalf of the PCD Italian Consortium, Guillaume Thouvenin, on behalf of the French Reference Centre for Rare Lung Diseases, Claudius Werner, Zorica Zivkovic, Claudia E. Kuehni, Panayiotis K. Yiallouros
Published 2019-09-01