Participation of adults with disorders/differences of sex development (DSD) in the clinical study dsd-LIFE: design, methodology, recruitment, data quality and study population

Participation of adults with disorders/differences of sex development (DSD) in the clinical study dsd-LIFE: design, methodology, recruitment, data quality and study population

Abstract Background dsd-LIFE is a comprehensive cross-sectional clinical outcome study of individuals with disorders/differences of sex development (DSD). This study focuses on various rare genetic conditions characterized by impaired gonadal or adrenal functionality. Methods/Design The study aims t...

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Bibliographic Details
Main Authors: Robert Röhle, Katharina Gehrmann, Maria Szarras-Czapnik, Hedi Claahsen-van der Grinten, Catherine Pienkowski, Claire Bouvattier, Peggy Cohen-Kettenis, Anna Nordenström, Ute Thyen, Birgit Köhler, on behalf of the dsd-LIFE group
Format: Article
Language:English
Published: BMC 2017-08-01
Series:BMC Endocrine Disorders
Subjects:
Disorders of sex development
Differences of sex development
DSD
Sexual differentiation
Interdisciplinary care
European network
Online Access:http://link.springer.com/article/10.1186/s12902-017-0198-y

Internet

http://link.springer.com/article/10.1186/s12902-017-0198-y

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